Wednesday, 14 November 2012
Hospital visit.
I have an appointment to see my oncologist on Thursday afternoon. I only have to go once a year now but each time I dread the visit. I have been very lucky, and up to now I have come out with a clean bill of health though you never know, she may find something I have missed, hence why I dread it I suppose! I check myself regularly for lumps and bumps, not that I have found any, apart from the reactive lymph nodes in my neck which I have been told are no problem, though they have yet to disappear. As my GP said to me one day when I asked about them, if they were any problem they would be the size of an orange by now! He has a point I suppose! I was given a 10 year time period to keep seeing the oncologist and surgeon, a lot of breast cancer patients only have to go for 5 years but mine was fast growing and aggressive, hence the increased time. I have now been going for 7 years and though I don`t like going, and dread every visit, I can imagine that when we reach that 10 year point when I no longer need to attend hospital on a regular basis, I may well feel apprehensive and worried, because my safety net will be taken from me. I know I felt the same when my chemotherapy sessions finished, although I was very glad to not have chemo any longer, I was apprehensive that I had no reassurance that things were okay every couple of weeks or so. They were brilliant, and understood the way I would feel, reassuring me that they were just on the end of the phone, if I needed any help or someone to talk to. They told me a lot of people feel the same way. The number is still underneath a fridge magnet on my fridge door.
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Just wanted to say thank you so much for having this blog - it's provided me with both strength, inspiration and hope. I too have both Ehlers Danlos and Stage 3, Grade 3 cancer and am undergoing chemotherapy first, to shrink a large tumor down. It's been working very well. I'm wondering if you can offer any details about any challenges you may have had with the radiation with Ehlers Danlos. Any permanent effects? Thanks so much!
ReplyDeleteNo permanent effects, my skin burnt under the breast and became infected, had dressings on for a long time and took time to heal properly but all good now. All the best. X
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